helen-louise (baratron) wrote,

  • Mood:

I have my electric wheelchair now.

Lately I have become utterly terrible at keeping in contact with other people. I went through a stage where I had little energy for writing my own posts but enough to comment on other people's posts, but now I'm hardly even managing that. Ugh. Please understand that I am interested in keeping in contact with people, I just lack the energy to do so. Feel free to ring, text or email me (although I'm pretty awful at replying to email at the best of times - lj comments are probably best).

My new-to-me electric wheelchair arrived on Monday, and I have been familiarising myself with the controls. The biggest problem is that it's rear-wheel-drive and the front wheels are like supermarket shopping trolley wheels - they spin on their own and get jammed facing the wrong way. I can see now why people rave about four-wheel-drive powerchairs. Ah well.

Yesterday I went out completely on my own, and got 10 books out of the public library. Apparently you can get up to 12 at a time, but that seemed like overkill. Also went to see my doctor for the last time before he retires - he said I looked really ill! How lovely! :O He wants me to have another blood test for vitamin D levels and then go to see this new doctor to discuss the results. Have to say that I'm loving the thought of having to interview a new doctor and teach them how not to patronise me :/

Today I slept all day, having hideous nightmares, so now I feel like shit :/

Tomorrow I'm going to the Tate Modern with Tim & Peter. I'm anxious, because I have to get my wheelchair onto the train, and I've never done that before -and I'm going to be on my own because Richard's away doing paintball stuff. (This is why I'm not going to the God Is party - not enough spoons for large gatherings of people, and too difficult to physically get there on my own). I have booked assisted travel, and got a reply from the train company confirming that - so theoretically they KNOW I'm going to be at the station wanting a ramp. It's just that driving onto a narrow ramp with a huge drop underneath is scary. Good thoughts would be helpful.

If anyone who's in town just for God Is wants to meet me on Sunday for lunch, that would be good - the lunch buffet at 222 Veggie Vegan is awesome :D

Should try to get some more sleep soon... eurgh.
Tags: chronic fatigue, tim+peter, wheelchairs

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